Parents still fighting for Charlie Gard's treatment

Connie Yates (L) and Chris Gard, parents of terminally-ill 10-month-old Charlie Gard, walk out of the Great Ormond Street Hospital for Children after delivering a petition of signatures supporting their case, in central London on July 9, 2017.

Along with Charlie's father Chris Gard, she had earlier vowed that the fight for their baby to receive experimental treatment was "not over".

The couple both in their 30s and from Bedfont, west London, want to take the baby to a hospital in the USA for experimental treatment, but lost a lengthy legal battle after judges ruled in favour of doctors at GOSH.

Supporters say they will give the hospital a petition signed by 350,000 people backing the parents' rights to take the baby from the hospital for treatment.

On Friday, it was announced that the hospital had applied to the high court for a new hearing to decide whether Charlie should be given the experimental drug, as urged by doctors in the United States and Rome.

The degenerative genetic condition affects the cells responsible for energy production and respiration, leaving Charlie unable to move or breathe without a ventilator.

Asked if it was right that judges could overrule the wishes of Charlie's parents, Mr Lidington told Sky News's Ridge On Sunday: "It is right that judges interpret the law, independently and dispassionately".

'There's no catastrophic brain damage, as I'm sure you have heard or read in the papers, ' Chris said.

There's nothing to lose, he deserves this chance.

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The mother of terminally-ill baby Charlie Gard has asked Great Ormond Street Hospital (GOSH) to let him go to the U.S. for experimental treatment, saying: "There's nothing to lose, he deserves a chance".

On Tuesday, the Vatican-owned Bambino Gesu Children's Hospital in Italy said it had been in touch with the London hospital "to verify whether the health conditions exist to possibly transfer Charlie to our hospital", said Mariella Enoc, president of the hospital, in a statement.

Ms Yates added: "If he's still fighting, we're still fighting".

GOSH describes experimental nucleoside therapies as "unjustified" but its decision comes after two global hospitals and their researchers contacted them "as late as the last 24 hours" to say they have "fresh evidence about their proposed experimental treatment". Charlie will die from his illness, his doctors have said.

Charlie's parents, from Bedfont in west London, joined a demonstration outside Great Ormond Street Hospital on Sunday.

A GoFundMe campaign for Charlie has raised more than £1.3 million, or roughly $1.7 million. His parents want him taken to the USA for experimental therapy.

Doctors finally bowed to global pressure on Friday to give the desperately ill baby another chance.After being handed fresh evidence by seven worldwide experts, Great Ormond Street asked the High Court to reopen the agonising case.

"Although the President himself has not spoken to the family, he does not want to pressure them in any way, members of the administration have spoken to the family in calls facilitated by the British government", a White House spokeswoman told the Daily News on Monday.

  • Sonia Alvarado